Patient Can Be A Loaded Word

Nikki discusses labels in healthcare within the context of rare disease advocacy. This follows closely from the #hcldr discussion a couple weeks ago, “Names and Labels in Healthcare” that covered this topic in a general sense. Nikki’s work tracks the previous discussion in a wonderful way. Don’t miss reading her superb commentary.


The announcement of this year’s theme for NORD‘s (National Organization for Rare Disorders) Rare Disease Day 2016 gave me something to mull over this morning. I’m going to play the devil’s advocate here for just a moment over this year’s choice of theme & slogan.

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